'Rare is common: more than 7000 rare diseases affect around 400 million people worldwide (source: WHO). Sadly, for many of those affected receiving the right treatment at the right time is often not a matter of course. Most of the rare diseases are genetic and present in childhood. 30 % of the children born with a rare condition do not reach the age of 5 years. Delays in diagnosis are often caused by a lack of awareness... At RareCare we aim to be an open information resource for individuals with a rare disease, their families and their care providers.'

'The European Academy of Paediatrics exists to promote the health of children and young people in Europe. It aims to improve standards in training, service and research and to represent the professional interests of paediatricians in the EU. It incorporates the section of paediatrics of the European Union of Medical Specialists and therefore has influence in the political arena to advocate for children and young people as well as for the profession.'

'Infolep is the international knowledge center for access to (digital) information resources on leprosy and related subjects.'