(with thanks to Jackeline Alger, HIFA-Spanish moderator)
Extracts below. Read online: https://www.who.int/news/item/18-10-2022-who-launches-new-campaign-to-am...
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18 October 2022
Today, WHO is launching the first global survey to better understand and address the needs of all those affected by cancer. The survey is part of a broader campaign, designed with and intended to amplify the voices of those affected by cancer – survivors, caregivers and the bereaved – as part of WHO’s Framework for Meaningful Engagement of People Living with Noncommunicable diseases (PLWNCDs)...
Nearly every family globally is affected by cancer, either directly – 1 in 5 people are diagnosed with cancer during their lifetime – or as caregivers or family-members...
Recent studies have shown that nearly half of people diagnosed with cancer experience anxiety and loss of faith and may be abandoned by their intimate partners...
The needs and preferences of people with cancer and their caregivers remain unknown to many providers and policy-makers. “We are making a long-term commitment to place people affected by cancer properly at the center of the agenda, to co-create better solutions” explained Dr Bente Mikkelsen, Director of the Department of Noncommunicable Diseases at WHO. “This campaign will include four phases: releasing the global survey, hosting national consultations, presenting best practices and implementing community-led initiatives. We are ready to open a new chapter and improve the well-being of people affected by cancer.”
The ambition of the global survey is to reach more than 100 000 responders from 100 countries, a majority of whom live in low- and middle-income countries. The survey results are expected in early 2023 and, thereafter, used to shape policies, programmes and services for people affected by cancer globally.
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Neil Pakenham-Walsh, Global Coordinator HIFA, www.hifa.org neil@hifa.org
Global Healthcare Information Network: Working in official relations with WHO