OpenNotes – Patients and clinicians on the same page [ https://www.opennotes.org/ ]
I am sorry that HIFA members may have been unable to access the Washington Post article about patients receiving their cancer diagnosis through patient access to results and records. I managed to view the report through an email link from Open Notes. The URL to Open Notes itself is above. [*see note below] I would recommend the site to any one interested in transparency in healthcare, personal health data and information for patients and families and patient engagement and self agency.
Richard
Here are links to some of the papers that The Washington Post referred to:
When bad news comes through the portal: Strengthening trust and guiding patients when they receive bad results before their clinicians (opennotes.org)
https://www.opennotes.org/research/when-bad-news-comes-through-the-porta...
Advocating for Healthcare Transparency at an International Scale (opennotes.org)
https://www.opennotes.org/news/liz-salmi-advocates-for-healthcare-transp...
Overcoming systemic barriers to make patient-partnered research a reality (opennotes.org)
https://www.opennotes.org/research/overcoming-systemic-barriers-to-make-...
R
HIFA profile: Richard Fitton is a retired family doctor - GP. Professional interests: Health literacy, patient partnership of trust and implementation of healthcare with professionals, family and public involvement in the prevention of modern lifestyle diseases, patients using access to professional records to overcome confidentiality barriers to care, patients as part of the policing of the use of their patient data Email address: richardpeterfitton7 AT gmail.com
[*Note from HIFA moderator (NPW): The embedded hyperlink in Richard's original message was https://www.washingtonpost.com/health/2024/07/14/medical-test-results-on... - I was able to access it after (free) registration.]
