I listened to the last 15 minutes of this webinar last night. Open Notes is creating a "Proxy Access Collaborative" which will share ways of facilitating the spread of proxy access to medical records, The webinar was entitled "Disconnections & Dead Ends: Fixing Proxy Access for Older Adults in Patient Portals" I have cc'd two members of the webinar organising team and Charlotte Blease who has undertaken a study of psychotherapists in 6 countries to elicit their views on the desirability of sharing psychotherapy notes with patients. studies
Open therapy notes: a guide for patients (opennotes.org)
Disconnections & Dead Ends: Fixing Proxy Access for Older Adults in Patient Portals
Millions of older adults in the United States manage their health with the help of family and other unpaid care partners from across town and around the world. And yet, existing patient portal technology still feels like a game of whack-a-mole for patients aiming to assign proxy access to a trusted friend or family member.
Portal proxy access is when a care partner has shared access to a person’s online patient portal information.
In this webinar you’ll learn about a new initiative by OpenNotes and the Johns Hopkins Bloomberg School of Public Health aiming to help fix the gaps in health information technology for older adults. You will get a status update on a multi-site demonstration project serving older adults in Portland, OR, Rochester, NY, and Salt Lake City, UT. And, you will learn from a patient and physician/family care partner as they describe their lived experiences navigating proxy access.
OpenNotes - Patients and clinicians on the same page
HIFA profile: Richard Fitton is a retired family doctor - GP. Professional interests: Health literacy, patient partnership of trust and implementation of healthcare with professionals, family and public involvement in the prevention of modern lifestyle diseases, patients using access to professional records to overcome confidentiality barriers to care, patients as part of the policing of the use of their patient data
Email address: richardpeterfitton7 AT gmail.com