Parents of children with autism often struggle to find reliable information: Kenya (2)

7 April, 2024

Thank you, Neil.

A Japanese child, Naoki Higashida, with autism, wrote a book, "The Reason I

Jump".

https://en.wikipedia.org/wiki/The_Reason_I_Jump

It became a fantastic movie.

https://www.youtube.com/watch?v=fVicuWVPrmc

This film involves a great documentary from Sierra Leone.

A similar situation in Kenya is depicted there with hope.

Hajime

CHIFA profile: Hajime Takeuchi is a professor at the Bukkyo University in Japan. Professional interests: child health, child poverty, child wellbeing. takechanespid@gmail.com He is a CHIFA Country Representative for Japan and a member of the CHIFA Steering Group (child health and rights) http://www.hifa.org/support/members/hajimetakechanespid AT gmail.com

2024年4月2日(火) 19:30 Neil Pakenham-Walsh <neil.pakenham-walsh@ghi-net.org>:

> With thanks to Global Health Now and NPR.

>

> Full text:

> https://www.npr.org/sections/goatsandsoda/2024/02/26/1232791446/raising-...

>

> In Kenya, parents of children with autism often struggle to find reliable

> information and affordable therapy support; they also cope with

> misconceptions and stigma, e.g., that “autism is caused by witchcraft”

>

> As a result, many children miss out on early autism diagnosis — and

> crucial early interventions.

>

> = "Preachers and traditional healers [in Kenya often] believe that autism

> is caused by witchcraft," says Dr. Lillian Kerubo of Kiambu County

> Hospital, a pediatrician and behavioral therapist who has for years worked

> with children who have autism. These preachers and healers tell parents

> that therapeutic intervention is not needed. Instead they might offer an

> herbal concoction with a promise that it will help the child or they'll

> advise the parents to pray and fast.

>

> Other misbeliefs and myths circulate: Some families believe that if a

> mother eats eggs during pregnancy that can bring on autism, and that boys

> typically miss developmental milestones so there shouldn't be a need to

> consult a physician in such cases. =

>

> HIFA profile: Neil Pakenham-Walsh is coordinator of HIFA (Healthcare

> Information For All), a global health community that brings all

> stakeholders together around the shared goal of universal access to

> reliable healthcare information. HIFA has 20,000 members in 180 countries,

> interacting in four languages and representing all parts of the global

> evidence ecosystem. HIFA is administered by Global Healthcare Information

> Network, a UK-based nonprofit in official relations with the World Health

> Organization. Email: neil@hifa.org

>

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====================

A dream you dream alone is only a dream.

A dream you dream together is reality.

Guest Researcher

Epidemiology and Global Health (EpiGH)

Department of Public Health and Clinical Medicine

Umeå University

SE-901 87 Umeå, Sweden

TEL +46 90 786 55 11

Prof. Hajime Takeuchi,MD (Paediatrician)

School of Social Welfare

Graduate School of Social Welfare

BUKKYO University

96, Kitahananobo-cho, Murasakino, Kita-ku, Kyoto 603-8301, Japan

TEL +81-75-366-5595 (dial-in)

E-mail: takechanespid@gmail.com