https://www.opennotes.org/news/new-opennotes-study-aims-to-mitigate-scan...
This planned study may be of interest. [see note from HIFA moderator below]
Health literacy and general literacy studies suggest that citizens with low health literacy and general literacy fare worse than those with better literacues.
R
HIFA profile: Richard Fitton is a retired family doctor - GP. Professional interests: Health literacy, patient partnership of trust and implementation of healthcare with professionals, family and public involvement in the prevention of modern lifestyle diseases, patients using access to professional records to overcome confidentiality barriers to care, patients as part of the policing of the use of their patient data. Email address: richardpeterfitton7 AT gmail.com
[*Note from HIFA moderator (NPW):
1. Here are the opening sentences from the announcement: 'BOSTON — November, 27, 2024 — Supported by a two-year grant from Yosemite, Beth Israel Deaconess Medical Center launches a study to alleviate the challenges cancer patients face in understanding their medical test results. Led by OpenNotes, the study, “Mitigating Misinformation & Scanxiety for Cancer Patients,” focuses on reducing the stress and confusion patients may face when receiving medical test results electronically before having the opportunity to discuss them with a clinician...']
2. OpenNotes is an interesting initiative: 'OpenNotes is an international movement spreading, studying, and teaching transparent communication among patients, families, and clinicians. When clinical notes are shared with patients, they are called ‘open notes.’ OpenNotes is motivated by evidence indicating that when health professionals offer patients and families ready access to clinical notes, the quality and safety of care improves. Primarily focused on research and education, OpenNotes is a not-for-profit and is based at Beth Israel Deaconess Medical Center, a major Harvard Medical School teaching hospital.']