A number of patient access to record patients and professionals are putting on a hybrid two day workshop in Glossop, North Derbyshire on June 5th and 6th. The day is designed to be informative, entertaining and educational with patient stories, references to the WHO One Health, and to the WHO Patient Safety Charter. The registration details are below or can be made by contacting richardpeterfitton7@gmail.com
https://www.eventbrite.com/e/25-years-of-engaging-communities-to-improve...
The workshop is very much in response to the discussion about patient's ownership of their health records at the WHO Patient Safety Charter workshop inSeptember 2023 - can patients even own their medical records?
The workshop will also address a changing culture of healthcare in which patients are becoming partners and not passive recipients of care. and mobile and ehealth. Dr Amir Hannan will cover the important implementation of patient access to records in the practice of mass murderer GP Dr Harold Shipman which Dr Hannan bravely took over after the
criminal conviction and arrest was completed.
*Engaging** communities and **patients using their own health and health records and WHO “One Health” and “Patient Safety Charter”*
Thursday June 5th and Friday June 6th at Glossop RUFC, Hargate Hill Lane, Charlesworth, Glossop, Derbyshire SK13 5HG
*Program DAY 1 – Thursday June 5th Community engagement*
*09.00 – 09.30* – Registration
*09.30 - 11.00*
*Workshop session 1 – Chair Richard Fitton*
*WHO One Health, WHO Patient Safety Charter, Personal health accounts and digital records*
*09.30 – 09.40* *Peter Thompson, president of Glossop RUFC* *Welcome and club community engagement*
*09.40 – 09.50 Richard Fitton, and Brian Fisher* *“Introduction and celebration of 25 years of patient access”*
*09.50 – 10.10 **“Draft collaboration plan for 2025-2027” HIFA and the WHO Office for NGOs in Official Relations*
*10.10 – 10.30* *Ellie*’s personal health story and *David Forsdike* on remote monitoring of kidney disease.
*10.30 – 11.00* *(* marks virtual presentations) “*One Health and Principle 8 of WHO Patient Safety Charter”*
*11.00 – 11.30 COFFEE*
*11.30 – 13.00*
*Workshop session 2 - Chair Brian Fisher*
*“WHO One Health Ecosystems – humans, walking, the planet, and the Holocene*
*11.30 to 11.40* *introduction Brian Fisher** “What is WHO One Health?”*
*11.40 – 12.00 Richard Fitton* *“One Health - ecosystems and the Holocene” (outside 46 metre walk if weather allows) *
*12.00 – 12.30* *Richard Fitton *“*One health Ecosystems – Climate change, population growth, planetary and eco-history, DNA, Life Ascending and the Holocene” (outside 50 metre walk if weather allows)*
*12.30 – 12.50 Brian Fisher* “*strengthening communities for better health”*
*12.50 – 13.00 Brian Fisher **– summing up*
*13.00 – 14.00 LUNCH*
*14.00 – 15.30 Workshop session 3* *Chair - Sally Rennison*
*“Local examples of community and volunteer engagement”*
*14.00 – 14.30* *Dr Brian Fisher **“**The evidence for the health and other benefits of community strengthening”*
*14.30 – 14.50* *Glossop volunteer Centre representative* *“Nicole and Emma Delaney Glossop Volunteer Centre, Glossop foodbank and coffee mornings” *
*14.50 – 15.10 Brian Fisher “**What we think the govt should do to make community strengthening business as usual across the NHS and Local Authorities*
*15.10 – 15.30 Bruce Elliott **“Walking in NE England and supporting Sunderland FC”.*
*15.30 - 16.00 Tea*
*16.00 – 17.00 Workshop session 4 Chair – Sally Rennison*
*Local examples of Communities of engagement continued*
*16.00 – 16.20 Emma Delaney/Paula and patients* *“Teaching patients to engage with NHS apps.”*
*16.20 - 16.40 Wade Tovey– **Community health in North East England confirmed*
*16.40* – *17.00* *“Summing up day 1”*
*17.30 – 20.00*
Dinner and entertainment Jazz combo
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*Program DAY 2 - June 6th Friday Patient use of their records*
*09.00 – 09.30* Registration
*09.30 – 11.00 Workshop session 5 Chair Brian Fisher*
*“Patient stories and their lifelong health records and health tools”*
*09.30 – 10.10 Paul Welsh and Dr Amir Hannan and Molly Nogueiradebarros*
*The aftermath of Dr Harold Shipman’s murder convictions. Celebrating Thornley House, Hyde’s, successful improvement of patients’ trust in the practice.*
*10.10 – 10.30 Richard Fitton, and * Josefin Hagstrom* *“Records management in childhood, adolescence and early adulthood in Sweden and Europe”*
*10.30 – 11.00 Sally Rennison, * Yanina Besstrashnova “**Discussion -apps, ownership, use of and access to health records in the UK and in the Russian Federation”*
*11.00 - 11.30 – COFFEE*
*11.30 – 12.30 Workshop session 6* *Chair - Sally Rennison *
*“Adulthood and Middle age, using their Apps and records”*
*11.30 to 12.00 Bruce Elliott and Oliver Crowton’s stories – *“*No Longer passenger*s
*12.00– 12.20 * Chris Carrigan – **“Use MY Data”*
*12.20 - 12.30 * Olivia Burns – “**Expert patients” *
*12.30 – 13.30 LUNCH*
*Workshop session 7 13.30 – 15.00 Chairperson - Brian Fisher*
*The later years, proxies, end of life, LPAs, advanced decisions using their national Summary Care records*
*13.30 - 13.50 John Galvin **Later life, LPAs and advanced decisions putting end of life wishes into the National summary care record*
*13.50 – 14.10 Wade Tovey –* managing proxy access
*14.10 - 14.30 * Cathe Des Roches “*Proxy access to personal health *records* in the USA”
*14.30 – 15.00 Brian Fisher, Richard Fitton, Sally Rennison- Plenary and summing up **“Shouldn’t we and our proxies be using, owning and managing our own health records?” Next steps*
*15.00 Finish*
HIFA profile: Richard Fitton is a retired family doctor - GP. Professional interests: Health literacy, patient partnership of trust and implementation of healthcare with professionals, family and public involvement in the prevention of modern lifestyle diseases, patients using access to professional records to overcome confidentiality barriers to care, patients as part of the policing of the use of their patient data Email address: richardpeterfitton7 AT gmail.com