May be of interest:
This report looks at the requirements for the national and legal processing of personal health data for planning and research.
Better, broader, safer: using health data for research and analysis (publishing.service.gov.uk)
https://assets.publishing.service.gov.uk/government/uploads/system/uploa...
First two paragraphs of the introduction:
'Data has transformed our world in powerful ways. It can connect us, help us make better decisions, and enable life-changing discoveries. In every field, from agriculture to finance, things that once seemed impossible have become commonplace. In some ways, health data is unlike other data. Concerns about privacy take on an even bigger life when it concerns our personal medical data. Moreover, the systems across the NHS and medical research can feel intimidatingly complex. Yet in other ways, healthcare is more suited to data and the innovation that follows than almost any other sector - with the depth and coverage of NHS data providing unique opportunities.
'Navigating complexity can come with even greater gains, and the number of applications for medical data in health research are seemingly never-ending. The rewards of getting it right are profound, with not just lives saved but longer, healthier and happier lives too.'
HIFA profile: Richard Fitton is a retired family doctor - GP. Professional interests: Health literacy, patient partnership of trust and implementation of healthcare with professionals, family and public involvement in the prevention of modern lifestyle diseases, patients using access to professional records to overcome confidentiality barriers to care, patients as part of the policing of the use of their patient data. Email address: richardpeterfitton7 AT gmail.com
